I have been trying to start this blog about my kids for the last month but have never quite found the right words to start it off. I have three wonderful children and like kids they do have there annoying days, but my two of my kids are anything but normal and some days the whole world just seems to be out there to annoy and confuse them. This can be frustrating not only for them but for my husband and I too as simple everyday things we take for granted or can do without even thinking they struggle with everyday.
My son has Aspergers (sometimes referred to as High Functioning Autism or Autistic Spectrum Disorder) and Dyspraxia (problems with co-ordination) add to this mix a very smart 9 yr old boy and some days its a recipe disaster. For him simple tasks like writing are painful and awkward, making it very hard to complete the simplest of school tasks that other kids just take for granted. He was 7 before he could manage to colour in a picture without going outside the lines and even then it took him 3 nights to complete it. The flipside being that he was reading way above his level very early on especially if its a NF book and has been known to take various science dictionaries to bed with him.
My daughter was born next and things didn’t really get much better. Her pregnancy and birth became more like a comedy of errors, with small things that weren’t done or not noted down as the pregnancy progressed turned into a giant snowball, with result being a rushed trip to a NICU in the next town with a 36hr old baby who’s brain was bleeding. By the time she was 48hrs old she had just endured 2hrs in surgery, received two units of blood and an MRI of her brain that looked like an apple with a bite out of it…….24hrs later the Drs had given up on her and told us turn off her life support as in their opinion she would be a ‘vegetable’. We didn’t and 10hrs later she was breathing on her own and despite their predictions she walks, talks and now at 6yrs old attends a mainstream school, with help from a teacher aide. Yes she has her problems but she is a survivor!
Last but not least is our little fashion diva, who is counting down the days until she starts school….about 9 weeks to go. For her life is difficult too, and not just because of her older siblings disabilities, for her its food that is the problem in particular anything containing gluten…..so its been a steep learning curve getting the birthday cakes to come out right!
So there, I’ve finally started!